Pengalaman perawat paliatif anak dalam memberikan perawatan end of life di rumah
DOI:
https://doi.org/10.31101/jkk.993Keywords:
perawat paliatif anak, perawatan end of life, studi kualitatifAbstract
Downloads
References
Adwan, J.Z., (2014). Pediatric Nurses’ Grief Experience, Burnout and Job Satisfaction. Jurnal Pediatr. Nurs. 29, 329–336. https://doi.org/10.1016/j.pedn.2014.01.011
Albers, G., Francke, A.L., de Veer, A.J.E., Bilsen, J., Onwuteaka-Philipsen, B.D., (2014). Attitudes of nursing staff towards involvement in medical end-of-life decisions: A national survey study. Patient Educ. Couns. 94, 4–9. https://doi.org/10.1016/j.pec.2013.09.018
Andersson, E., Salickiene, Z., Rosengren, K., (2016). To be involved — A qualitative study of nurses’ experiences of caring for dying patients. Nurse Educ. Today 38, 144–149. https://doi.org/10.1016/j.nedt.2015.11.026
Bakker, A.B., Heuven, E., (2006). Emotional dissonance, burnout, and in-role performance among nurses and police officers. Int. J. Stress Manag. 13, 423–440. https://doi.org/10.1037/1072-5245.13.4.423
Cricco-Lizza, R., (2014). The need to nurse the nurse: emotional labor in neonatal intensive care. Qual. Health Res. 24, 615–628.
Davis, C.S., Snider, M.J., King, L., Shukraft, A., Sonda, J.D., Hicks, L., Irvin, L., (2018). A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team. Health Commun. 1–11. https://doi.org/10.1080/10410236.2018.1443262
Foster, T.L., Lafond, D.A., Reggio, C., Hinds, P.S., (2010). Pediatric Palliative Care in Childhood Cancer Nursing: From Diagnosis to Cure or End of Life. Semin. Oncol. Nurs. 26, 205–221. https://doi.org/10.1016/j.soncn.2010.08.003
Funk, L.M., Peters, S., Roger, K.S., (2017). The emotional labor of personal grief in palliative care: Balancing caring and professional identities. Qual. Health Res. 27, 2211–2221.
Gjerberg, E., Lillemoen, L., Førde, R., Pedersen, R., (2015). End-of-life care communications and shared decision-making in Norwegian nursing homes - experiences and perspectives of patients and relatives. BMC Geriatr. 15. https://doi.org/10.1186/s12877-015-0096-y
Glajchen, M., Goehring, A., (2017). The Family Meeting in Palliative Care: Role of the Oncology Nurse. Semin. Oncol. Nurs. 33, 489–497. https://doi.org/10.1016/j.soncn.2017.09.007
Grinyer, A., (2015). Palliative and end of life care for children and young people: home, hospice, and hospital.
Harstäde, C.W., Blomberg, K., Benzein, E., Östlund, U., (2018). Dignity-conserving care actions in palliative care: an integrative review of Swedish research. Scand. J. Caring Sci. 32, 8–23. https://doi.org/10.1111/scs.12433
Hendricks-Ferguson, V.L., Sawin, K.J., Montgomery, K., Dupree, C., Phillips-Salimi, C.R., Carr, B., Haase, J.E., (2015). Novice nurses’ experiences with palliative and end-of-life communication. J. Pediatr. Oncol. Nurs. 32, 240–252.
Herr, K., Coyne, P.J., McCaffery, M., Manworren, R., Merkel, S., (2011). Pain Assessment in the Patient Unable to Self-Report: Position Statement with Clinical Practice Recommendations. Pain Manag. Nurs. 12, 230–250. https://doi.org/10.1016/j.pmn.2011.10.002
Jack, B.A., O’Brien, M.R., Scrutton, J., Baldry, C.R., Groves, K.E., (2015). Supporting family carers providing end-of-life home care: a qualitative study on the impact of a hospice at home service. J. Clin. Nurs. 24, 131–140. https://doi.org/10.1111/jocn.12695
Kaup, J., Höög, L., Carlsson, M.E., (2016). Care for Dying Patients at Midlife: Experiences of Nurses in Specialized Palliative Home Care. J. Hosp. Palliat. Nurs. 18, 564–571.
Kelley, A.S., Morrison, R.S., (2015). Palliative Care for the Seriously Ill. N. Engl. J. Med. 373, 747–755. https://doi.org/10.1056/NEJMra1404684
KEPMENKES, (2007). Keputusan Menteri Kesehatan Republik Indonesia tentang Palliative Care.
Kovács, M., Kovács, E., Hegedűs, K., (2009). Is emotional dissonance more prevalent in oncology care? Emotion work, burnout and coping. Psychooncology. 19, 855–862. https://doi.org/10.1002/pon.1631
Long, A.C., Downey, L., Engelberg, R.A., Ford, D.W., Back, A.L., Curtis, J.R., (2016). Physicians’ and Nurse Practitioners’ Level of Pessimism About End-of-Life Care During Training: Does It Change Over Time? J. Pain Symptom Manage. 51, 890–897.e1. https://doi.org/10.1016/j.jpainsymman.2015.11.024
MartÃn, J.M., Olano-Lizarraga, M., SaracÃbar-Razquin, M., (2016). The experience of family caregivers caring for a terminal patient at home: A research review. Int. J. Nurs. Stud. 64, 1–12. https://doi.org/10.1016/j.ijnurstu.2016.09.010
Mazza, J.K., (2015). The role of recreation therapy protocols in cancer treatment and survivor quality of life (PhD Thesis). University of Toledo.
Milberg, A., Friedrichsen, M., (2017). Attachment figures when death is approaching: a study applying attachment theory to adult patients’ and family members’ experiences during palliative home care. Support. Care Cancer 25, 2267–2274. https://doi.org/10.1007/s00520-017-3634-7
Montgomery, K.E., Sawin, K.J., Hendricks-Ferguson, V., (2017). Communication During Palliative Care and End of Life: Perceptions of Experienced Pediatric Oncology Nurses. Cancer Nurs. 40, E47–E57. https://doi.org/10.1097/NCC.0000000000000363
Morgan, D., (2009). Caring for dying children: assessing the needs of the pediatric palliative care nurse. Pediatr. Nurs. 35, 86.
Nilsen, P., Wallerstedt, B., Behm, L., Ahlström, G., (2018). Towards evidence-based palliative care in nursing homes in Sweden: a qualitative study informed by the organizational readiness to change theory. Implement. Sci. 13. https://doi.org/10.1186/s13012-017-0699-0
Nosek, C.L., Kerr, C.W., Woodworth, J., Wright, S.T., Grant, P.C., Kuszczak, S.M., Banas, A., Luczkiewicz, D.L., Depner, R.M., (2015). End-of-Life Dreams and Visions: A Qualitative Perspective From Hospice Patients. Am. J. Hosp. Palliat. Med. 32, 269–274. https://doi.org/10.1177/1049909113517291
Rydé, K., Hjelm, K., (2016). How to support patients who are crying in palliative home care: an interview study from the nurses’ perspective. Prim. Health Care Res. Dev. 17, 479–488. https://doi.org/10.1017/S1463423616000037
Sherman, D.W., Cheon, J., (2012). Palliative care: A paradigm of care responsive to the demands for health care reform in America. Nurs. Econ. 30, 153.
Sullivan, J., Gillam, L., Monagle, P., (2015). Parents and end-of-life decision-making for their child: roles and responsibilities. BMJ Support. Palliat. Care 5, 240–248.
Van der Geest, I.M.M., Darlington, A.-S.E., Streng, I.C., Michiels, E.M.C., Pieters, R., van den Heuvel-Eibrink, M.M., (2014). Parents’ Experiences of Pediatric Palliative Care and the Impact on Long-Term Parental Grief. J. Pain Symptom Manage. 47, 1043–1053. https://doi.org/10.1016/j.jpainsymman.2013.07.007
WHO. (2017). WHO | NCD mortality and morbidity [WWW Document]. WHO. URL http://www.who.int/gho/ncd/mortality_morbidity/en/ (accessed 10.3.17).
Wiener, L., McConnell, D.G., Latella, L., Ludi, E., (2013). Cultural and religious considerations in pediatric palliative care. Palliat. Support. Care 11, 47–67. https://doi.org/10.1017/S1478951511001027
Worldwide Palliative Care Alliance, W.H.O., (2014). Global Atlas of Palliative Carea at The End of Life.
Downloads
Published
How to Cite
Issue
Section
Citation Check
License
With the receipt of the article by the Jurnal Kebidanan dan Keperawatan Aisyiyah Editorial Board and the decision to be published, then the copyright regarding the article will be diverted to Jurnal Kebidanan dan Keperawatan Aisyiyah. Universitas 'Aisyiyah Yogyakarta as the publisher of Jurnal Kebidanan dan Keperawatan Aisyiyah hold the copyright regarding all the published articles in this journal.
Jurnal Kebidanan dan Keperawatan Aisyiyah is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
